It is hard to believe, but two years ago today, I received that awful phone call from my eye doctor. I returned a couple of weeks ago for a check of my eyes and all of the scarring was gone.
Over the two years, a lot has changed. In terms of CML, things are going well. I am in molecular remission with few if any side effects. I am working with my oncologist at Dana-Farber and also Dr. Druker at OHSU. My next appointment in Boston is next month and then in May, we are off to Portland Oregon again.
As I reflect on the past two years, I want to give thanks. I am well aware that a diagnosis of cancer affects everyone surrounding an individual. I think it is probably harder for those around me than it is for myself to deal with. I have received the most wonderful support from family and friends. It is at times of need when we really see the true nature of people. I have been so impressed by the responses I have received. I may not say it enough, but I love and thank you for all that you have done for me.
My journey in the CML world takes an interesting turn next month as I head to Washington, DC to lobby our congressmen and senators on behalf of the Leukemia and Lymphoma Society. I am looking forward to this adventure and will keep you posted with details.
5 comments:
We just want to tell you we love you and are there for you always as is the rest fo your family.
Mom and Dad
We will always be there for you every step of the way. We hope to see all of you soon!
Love, Dave, Lisa, Josh, and Jake!
We all all never far away and support you 1001%.
Papa Bob
Jon:
Thank you for this update. I am so happy to hear that all is going well. Your efforts and advocacy on our behalf continue to inspire us all here at LLS.
Have a wonderful week and talk to you soon!
Erin Arcand
Hey there Jon!
Two years, yup - a lifetime and yet just 2 years. I am thrilled that you are still doing so well and Thank You! for going to DC on our behalf.
love and light
Annie
Steven's mom
http://livingwithcml.blogspot.com
Post a Comment