I started this blog to keep my friends and family informed about my progress with Chronic Myelogenous Leukemia (CML). I was diagnosed with CML on March 3, 2006 after having some blood work ordered by my ophthalmologist. I am going to be tracking my progress throughout my treatment. I invite you to comment.
Thursday, March 01, 2007
A Little Piece of Heaven
Let me start by apologizing for not writing for some time. I have received complaints (rather suggestions) to update my blog. It has been almost 2 months since I have written. There are a number of reasons. Not much has happened with me in terms of CML. I have not had a doctor's appointment or blood work since December. I am going in later this month for my 3 month check-up and the ever so exciting bone marrow biopsy. The other thing that will happen in 2 days is my Cancerversary (to borrow a phrase from Erin Zammett Ruddy). March 3rd will be the one year anniversary since I was diagnosed. That is kind of amazing to me that the time has gone by so quickly. The good news is that I continue to feel very healthy and as far as I can tell, the CML seems to be in control. After my last check-up, my counts were all excellent and I was ahead of schedule in terms of where the doctors wanted me to be at this point (then again, I have always been an early bird).
I find it interesting that I have not been thinking about CML very much at all. Whereas last year at this time, it was dominating my life, it has taken a back seat to other, potentially more important things. That is not to say I forget about having CML, I just don't dwell on it. I used to spend a lot of time reading the CML discussion groups. I am doing that less and less. Perhaps it is denial, but I will be reminded again later this month during my trip to Dana-Farber.
So what have I been doing to occupy my time. The picture above should give you a clue. I just spent an incredible week with my family (wife and kids, brother, sister-in law and nephew, and parents) in beautiful Colorado. Some of you may not know this, but I was actually born in Colorado, so I guess you could say I was a native.
The picture is of Beaver Creek where we stayed and skied for a week. It was so sunny and warm that I came home with a sunburn. A big thank you to the Horvitz family for letting us stay with them and enjoy this little piece of heaven. We were not that far anyway, since we were 10,000 feet up. It took a little while to get adjusted to the altitude and the time difference, but it was worth it. I have found that taking time for myself and my family is essential. That is good advice no matter what you are dealing with.
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2 comments:
It was truly a wonderful week in Colorado. So beautiful and fun for everyone. We are happy to have shared it all with our wonderful family.
mom
Dear Jon and Family
One year today. Its been a long year, yet so short in so many ways.
Here's wishing that in this second year with cml, it's able to find a secure spot in the background of your daily lives. No bumps, no wobbles and all good and smooth results.
I have a picture in my mind of a single cupcake with one candle on it, happily burning away. One day there will be many more joining that one!
Love and Light
Annie
Steven's mom
livingwithcml.blogspot.com
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