Thursday, January 07, 2010


Yesterday I received my latest PCR test results. Fortunately, they continue to be undetectable or PCRU for those who know CML jargon. What was funny was that I had forgotten to call to get the results until my CML buddy, Wanda, reminded me. Thanks Wanda!

I started thinking that this whole thing has become so normal to me and really an after thought. That is quite different than it was almost 4 years ago where I would dwell on every number or any symptom. I would spend time reading about CML, looking at the message boards, and communicating with others about this topic. Now, it hardly comes up at all. The reality is that I don't really think about it all that much.

The only time it is a reality is when I go to the hospital. This past visit, I went for a routine blood test on a Saturday. The blood lab is not open at Dana-Farber on Saturday so they sent me to the infusion room. I was sitting around with many people who were getting chemotherapy and possibly spending the day there. I really felt out of place. I do have to return in February for a 6-month follow up.

CML has certainly changed over the course of my diagnosis. It has gone from a primary stressor at the beginning, to some background noise every so often. Let's hope it stays that way. Perhaps one day I will be able to say, I used to have CML.


Anonymous said...

Your parents continue to be very grateful for these wonderful results.

Deborah said...

Here's to more good news, health and happiness for my dear friend, Jon, in 2010! Your positive attitude and outlook will no doubt continue to carry you far.

Annie - Steven's mom said...

I wanted to write something, but I don't know how to get the smile from my face to this page!
Nothing quite says what this posting of your makes me think and feel - but I am still smiling.
love and light

Lori said...

Congrats on staying PCRU!

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